Adelaide was born premature, along with her twin brother, at 26 weeks. She weighed a fierce 2 lbs., 1 oz. Within her first week of life, she had a serious brain bleed which resulted in hydrocephalus. Addie has endured a lot, including 15+ surgeries, in her six years of life. She was diagnosed with cerebral palsy and a seizure disorder and relies on a wheelchair for mobility. Despite these difficulties, she is the happiest little girl and continues to amaze us as she grows and learns new skills.
However, as Addie continues to grow, we face new challenges. This girl that could once be held in our hands, is getting harder to safely lift. Earlier this year we started to research about handicap accessible vans and conversions, which brought us to United Access. Brett Vena was SO helpful and ensured that we found the right options, not only for Addie, but for our family of six. The cost of adapting a vehicle is expensive and not covered by insurance. Mr. Vena gave us information on grant programs and with his help, we applied for a grant through the Steelman Family Foundation.
We will forever be grateful to the Steelman Family Foundation, who gave us the most generous grant! It covered half the conversion cost!! Our handicap accessible van has been such a blessing. We are now able to safely transport Addie and easily go places as a family. We are extremely excited to be taking the van to Gulf Shores this summer on our first family vacation. From the bottom of our hearts, thank you!